Because no child should live in pain

The Coalition Against Pediatric Pain is a national non-profit committed to improving the quality of life of children living with chronic pain from rare diseases by: supporting and uniting families affected by pediatric pain, advocating for children in pain by increasing awareness of their needs, educating others regarding their long-term consequences of pediatric pain, funding research dedicated to pediatric pain conditions and providing resources to families and professionals.

 

TCAPP was founded by families of children who are effected by chronic neuropathic pain disease. All of the founding families children suffer from RSD/CRPS (Reflex Sympathetic Dystrophy/ Complex Regional Pain Syndrome) and many suffer from multiple pain conditions, such as EDS (Hypermobility Syndrome), muscle spasms, migraines, abdominal migraines, and painful GI issues.

Dealing with pain is hard for anyone, and pain can quickly overtake your life. When a child is affected with pain, it affects not only them, but the family as well. In addition, pain is poorly misunderstood in adults, and VERY misunderstood in children. This results in a complex maze of navigating the medical system, the school system, and adds to the everyday struggles of growing up, even into early adulthood.


 

We invite you to watch this awareness video that attempts to describe the pain those afflicted with RSD experience.