You Can Make a Difference

The Coalition Against Pediatric Pain is a national non-profit committed to improving the quality of life of children living with chronic pain from rare diseases by: supporting and uniting families affected by pediatric pain, advocating for children in pain by increasing awareness of their needs, educating others regarding their long-term consequences of pediatric pain, funding research dedicated to pediatric pain conditions and providing resources to families and professionals.



Shannon Curley Research Fund

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The University of Washington is conducting a study to examine the neuropathology changes in EDS. Researchers hope to better understand this highly misunderstood condition. 

Documentary Film

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Help shine a light on the gaps and obstacles in medicine that are hurting our children. It's time to start this uncomfortable dialogue and work together to improve access to effective treatment. Please support this groundbreaking film. 


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Bring a smile to a child in chronic pain by sponsoring a small gift made from others in chronic pain.  It's a win-win for all of us.


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Help send a child living in pain to pediatric pain camp, at the Center For Courageous Kids. Make friends, find support, enjoy s'mores, and summer fun with medical supervision. 


Sawyer's Shining Stars

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We raise awareness and provide education regarding EDS. We fulfill wishes and improve quality of life by providing bodywork, movement, mediation and more.