New Center For Ehlers-Danlos Research at Towson Hospital's Genetics Program in Baltimore
Clinical research, education and treatment for Ehlers–Danlos syndrome (EDS), a group of inherited connective tissue disorders for which there is no cure, took a significant step forward today with the establishment of the Ehlers-Danlos National Foundation Center for Clinical Care and Research at GBMC's Harvey Institute for Human Genetics. May is Ehlers-Danlos Syndrome Awareness Month, and the disease is believed to affect about one in 2,500 to one in 5,000 individuals worldwide.
Funding from the Ehlers-Danlos National Foundation (EDNF) will support a virtual center at Greater Baltimore Medical Center (GBMC) under the direction of Clair Francomano, MD, GBMC's Director of Adult Genetics. The Center will provide comprehensive clinical care for patients, professional education for physicians, and develop research. Elliot Clark, EDNF Board Chairman, and Shane Robinson, EDNF Executive Director, were on hand at GBMC to formally sign an agreement officially announcing the partnership between EDNF and GBMC.
"We are extremely grateful to EDNF for their support which will allow us to explore new treatment options for patients and raise awareness among physicians. It is our hope that these efforts will lead to earlier diagnosis and better treatment options for patients with EDS, and provide the opportunity for continued research into the causes of EDS," said Dr. Francomano. "Knowledge concerning the underlying causes of the disease will enable us to seek rationale therapies for this complex and disabling condition."
"Partnering with the Greater Baltimore Medical Center to open the first ever EDNF Center for Clinical Care and Research is an exciting new initiative for the foundation," Clark said. "EDS often goes undiagnosed because physicians are not aware of the disease. The funding EDNF is providing to establish this clinic is a major step forward in advancing our mission to educate healthcare practitioners and patients and provide treatment to help people living with EDS."