Massachusetts Physician Registry & State Outreach


Welcome

Welcome to the Massachusetts page, we are happy you are here!  Check out our news, events, photo galleries, medical professional guide and support groups in your area.  If you have additions that you would like to make, please e-mail them to AURORA@TCAPP.ORG


News and Events

Photo Gallery


Medical Professionals

EDS Massachusetts/New England Support Group Recommendations of Doctors/Medical Contacts:             Last updated: 9/28/2014  
Click here to view

Sanjay Bansal, M.D.
Pediatric Endocrinologist
Familiar with secondary Vitamin D deficiency, thyroid disorders that may accompany some chronic pain conditions.
WEBSITE

Richard Barnum, M.D.
Pediatric Private Psychiatrist
Extremely versed in the effect of chronic pain conditions on the pediatric patient, the families, and the complexities encountered through the medical system.
(617) 469-3911

Jaime Belkind-Gerson, M.D.
Pediatric Gastroenterologist

WEBSITE

Stuart Braun, M.D.
Pediatric Orthopedic Surgeon

Familiar with joint instability and conservative measures to stabilize them.
WEBSITE

Kipp Dye, PT
Physical Therapist

Familiar with recognizing and working with RSD/CRPS
WEBSITE

Alexander Flores, M.D.
Pediatric Gastroenterologist

Familiar with motility disorders such as gastroparesis, abdominal pain that accompany many pediatric pain conditions.
WEBSITE

Jodi Hoffman, M.D.
Pediatric and Adult Connective Tissue Geneticist
Familiar with Connective Tissue Disorders.
WEBSITE

Steven Hwang, M.D.
Pediatric and Adult Neurosurgeon
Familiar with neurosurgical complications that can accompany Ehlers-Danlos Syndrome such as occult tethered cord, tethered cord, cranial cervical instability and chiari malformation.
WEBSITE

Alisa Niksch, M.D.
Pediatric Cardiologist

Extremely versed in dysautonomia, POTS, and other types of syncope that accompany mitochondrial dysfunction, EDS, or RSD/CRPS
WEBSITE

Joan Stoler, M.D.
Geneticist for Connective Tissue Disorders
WEBSITE

Mitchell Strominger, M.D.
Pediatric and Adult Neuroopthalmologist
Familiar with Ehlers-Danlos and Mitochondrial Disorders
WEBSITE

Lynn Wachs, M.D.
Pediatrician

Familiar with helping to manage as a pediatrician chronic pain cases.
phone: (781) 487-4340

Harry Webster, M.D.
Pediatric Physiatrist
Familiar with and able to work with gait abnormalities encountered in Ehlers-Danlos Patients and RSD/CRPS.
WEBSITE


TCAPP does not endorse these doctors, their names are provided by at least one client suffering from a pediatric pain condition that has had a positive experience; this does not mean that eveyone's experience with that particular doctor has been positive. Keep in mind, choosing doctors is much like trying on shoes... each perfect fit may be different for each individual.

We rely on recommendations from patients, if you have had a positive experience with a physician and feel like they should be on this list, please submit the doctor's name, specialty, internet link or office telephone number and what they have helped you with.


Support Groups