This holiday season, The Coalition Against Pediatric Pain is thankful for all of the support that allows us to continue our mission to improve the quality of life for children living with complex pediatric pain. Your donations have enabled us to host physician Think Tanks, send care packages, provide education and information to families and physicians, and helped found the first ever FREE pediatric pain summer camp! We have passionately worked to raise awareness, improve diagnostic time and help families navigate the challenges of finding effective treatment.
This #GivingTuesday, we would like to thank you for your support and introduce you to some of the people whose lives have been touched by your generosity and ask you to help continue to spread the word.
TCAPP is proud to share the stories of so many of our friends on Tuesday November 29th in a unique inside look at “A Day In The Life…”
Stay tuned into our Facebook Page on Tuesday November 29th #GivingTuesday – We will be broadcasting live all day!
You’ll see first-hand of what it really means to live with complex pediatric pain. We ask for your support by tuning in, commenting, sharing and donating!
Here is our schedule of Facebook Lives we have planned:
9:15-10:00 Natalia Rijos
16 year old with RSD/CRPS, Gastricparesis, EDS
11:15 – 12:00 Abby McElroy
25-year-old 4th year veterinary student with EDS, POTS, Gastroparesis, Chiari Malformation and Tethered Cord (Has been released)
12:15 – 1:00 Rosemary Wiser
20 something nurse with RSD/CRPS, EDS, POTS/Dysautonomia and Lyme
1:15 – 2:00 Emma Parcells
14-year-old with RSD/CRPS, EDS, POTS, & MCAD
2:15 – 3:00 Emily Doyon
26-year-old with CRPS/RSD, Mitochondrial Disease, EDS, MCAD, POTS/Dysautonomia and HKPP
3:15 – 4:00 Lucky Eschauzier
11-year-old with EDS, POTS, MCAD, Gastroparesis and Tethered Cord
4:15 – 5:00 Sawyer Horcher
7-year-old with EDS, POTS, Ketotic Hypoglycemia and Hashimotos
5:15 – 6:00 Sammie Barrett
20 something with CRPS/RSD, EDS, POTS and MCA
TCAPP has big plans for 2017!
We are excited to be starting a research project dealing with Ehlers Danlos Syndrome, a major pediatric pain condition affecting up to 1 in 500 people in this country. We are also working on a documentary film that will give the rare community a voice, and talk about the progress in treatment and identify the continuing need to help bring EDS kids and other rare disease groups out of the margins of mainstream medicine.
We can’t continue our great work without the support of everyday individuals (many of whom suffer from pain themselves), corporations, groups, and physicians that have decided to support our cause. We are incredibly thankful to all of you, and look forward to working even harder next year to help make life better for kids living with complex pain.