Our Board includes parents, advocates, and professionals who are all dedicated to helping families of children with pediatric pain.
Sue Pinkham / President/Secretary
Sue Pinkham is a Mom whose daughter was diagnosed with CRPS/RSD in 2005 and Ehlers Danlos Syndrome in 2012. She has been involved in raising awareness of CRPS/RSD and chronic pain since 2008. Sue is one of the founding Moms and the President of The Coalition Against Pediatric Pain. Her duties include presiding over the Board meetings, supporting children and families who live with pediatric pain conditions, fundraising, and working to fulfill the mission of TCAPP.
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Mike Pinkham / Treasurer
Mike Pinkham is a Certified Public Accountant who received his Master of Science in Accounting from Suffolk University in 2016. He has experience in tax and assurance, and works with numerous non-profits in addition to for-profit enterprises and individuals. Having seen his cousin battle chronic pain for over a decade, Mike is committed to fulfilling the mission of TCAPP in any way he can. Mike serves as Treasurer for TCAPP, where he is responsible for bookkeeping and compliance.
Jodi Pinkham
Jodi has been part of TCAPP since day one as a teenager living in chronic pain. Jodi sends cards/smiles to TCAPP Kids, fundraises and plans/organizes TCAPP’s Pediatric Pain Week at the Center for Courageous Kids. Jodi’s been living with chronic pain since the age of 14 and was eventually diagnosed with Ehlers Danlos Syndrome after searching for answers for many years. She is passionate about helping children who live with chronic pain and helping them make connections with others who understand what they are going through.
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Lexi Uslu
Lexi is a 24 year old who lives with many chronic illnesses. She was diagnosed as a child and now her mission in life is to help other children to find happiness despite being chronically ill. Lexi lives to help and support families and kids going through the struggle of living in chronic pain and having chronic illness. Lexi is a writer and enjoys spending time with her cat and husband (as well as helping TCAPP).
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Lorie Goodall
Lorie is a Mom of two children, Ashley, 33 and Andrew, 28. Ashley was diagnosed with RSD/CRPS at the age of 13 and many years later and several doctors later she was diagnosed with Ehlers-Danlos Syndrome, Postural Orthostatic Tachycardia Syndrome, Mast Cell Activation Disorder and other health conditions. Andrew was diagnosed with Ehlers-Danlos Syndrome and Postural Orthostatic Tachycardia Syndrome at the age of 20. Lorie was the former Vice President of Rock Out to Knock Out RSD, Inc. and has been volunteering for many years with other non-profits. With over 20 years of experience helping others navigate this complicated medical journey, Lorie looks forward to working with TCAPP and continuing to help our community.
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Ashley Goodall
Ashley Goodall has been an advocat for individuals living with chronic pain for two decades in her role as President of Rock Out to Knock Out RSD, Inc. She was diagnosed with RSD as a young teenager and has since been diagnosed with Ehlers-Danlos Syndrome, it’s comorbidities, and other medical conditions. Throughout her journey, Ashley has raised awareness and funds for those living with chronic pain. Her philosophy is centerd around the belief that no one should have to face their struggles alone. She has been a consistent supporter of TCAPP and is dedicated to furthering their mission.