TCAPP Talks

An archive library of newsletters, news, blog posts, and other significant items that will help aid the pediatric pain patient and their families. 

 

Newsletter Archive

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TCAPP Newsletters

The newsletter featured Knowing About Conversion Disorder and the Effects of Misdiagnosis, A Parents Perspective: The Top 3 Mistakes and Lessons Learned While Advocating for My Child, A TCAPP Family Assistance Fund Recipient, and a poem by an EDS sufferer.

The May 2013 newsletter featured Welcome to TCAPP. Ehlers Danlos Syndrome, Caring for Your Complex Child and The Challenge of Pain (A Child's Perspective)

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Parents Talk Blog

Parents Talk Blog
What Gives on #GivingTuesday?
Why Grey's Anatomy Did Not Blow The Ehlers Danlos Episode

By DM Sullivan  A recent episode of Greys Anatomy featured a storyline about Ehlers Danlos Syndrome. By getting some of the facts wrong, Grey's writers actually delivered a more true to life portrayal.

Why NBC Failed The Mito Community – TWICE!

Shannon Marie Curley

5/7/93 - 5/31/15